Request to align with EO 14168

Attachment 16 – Requests to Align with EO 14168

Summary of request: Centers for Disease Control and Prevention/Office of Public Health Data, Surveillance, and Technology is requesting to revise questions to align with EO 14168 Defending Women From Gender Ideology Extremism and Restoring Biological Truth to the Federal Government.

Description of Changes Requested: This request updates sex questions to be in accordance with EO 14168. Please check the boxes below if your request includes:

☒ Revision of an existing question(s)

☒ Deletion of an existing question(s)

Summary table

Condition	# of affected data elements	Data element name	# of data element deletions	# of changes to data element descriptions
All conditions	1	sex	0	1
Hepatitis	8	Gender Identity, Antiviral Medication, Mother Nucleic Acid Test, Mother Nucleic Acid Test Result, Mother Nucleic Acid Test Viral Load, Mother HBeAg Test, Mother HBeAg Test Result, Specimen From Mother or Infant	7	1
Human Rabies	1	Gender	1	0
Listeria	1	Gender	1	0
Mpox	11	Gender Identity, Sexual Orientation, Sex with Transgender Female Partners, Number of Transgender Female Partners, Numerical Range of Female Transgender Partners, Sex with Transgender Male Partners, Number of Transgender Male Partners, Numerical Range of Transgender Male Partners, Sex with Other Gender Identity Partners, Number of Other Gender Identity Partners, Numerical Range of Other Identity Gender Partners	10	1
STD (not congenital)	4	Total number of sex partners last 12 months?, Transgender, Sexual Orientation*, Gender Identity	3	1

Description of Changes to Burden (if applicable):

There is no change in Burden Hours associated with the modifications made to comply with EO 14168

Table A: Description of Changes (optional, helpful if multiple changes to multiple forms):	Type of Change	Question/Item	Requested Change
Att 5- Core Data	Question Revision	Subject’s Sex (Description: Subject’s current sex)	Change data element name to ‘Sex’ and data element description to “Person’s sex.” And keep value set as Male/Female/Unknown (PHVS_Sex_MFU) Justification: This value set of Male/Female/Unknown is the same as the value set that is used for the Generic Clearance for the Collection of Minimal Data Necessary for Case Data During an Emergency Response, OMB # 0920-1447. For both data collections (NNDSS and MDN) CDC is a secondary data collector. The program would like to leave the third option (Unknown) because further changes would require informing state partners about the change and making multiple system updates across both CDC and STLTs. [Unknown is used to indicate no response was provided.  The term gender (or other versions of gender) is not used.]
Att 10 – Disease-specific data	Question Revision	Antiviral Medication (Description: Did the gestational parent receive hepatitis B antiviral therapy during the third trimester of pregnancy?) Conditions: Hepatitis	Change Description to be: Did the gestational mother receive hepatitis B antiviral therapy during the third trimester of pregnancy?
Att 10 – Disease-specific data	Question Revision	Mother Nucleic Acid Test (Description: For hepatitis B, perinatal, did the gestational parent receive nucleic acid testing for HBV DNA during pregnancy? For hepatitis C, perinatal, did the gestational parent receive nucleic acid testing for HCV RNA (including qualitative or quantitative PCR, or genotype testing) during pregnancy?) Conditions: Hepatitis	Change Description to be: For hepatitis B, perinatal, did the gestational mother receive nucleic acid testing for HBV DNA during pregnancy? For hepatitis C, perinatal, did the gestational mother receive nucleic acid testing for HCV RNA (including qualitative or quantitative PCR, or genotype testing) during pregnancy?
Att 10 – Disease-specific data	Question Revision	Mother Nucleic Acid Test Result (Description: For hepatitis B, perinatal, if the gestational parent received nucleic acid testing for HBV DNA during pregnancy, then indicate the result. For hepatitis C, perinatal, if the gestational parent received nucleic acid testing for HCV RNA (including qualitative or quantitative PCR, or genotype testing) during pregnancy, then indicate the result. ) Conditions: Hepatitis	Change Description to be: For hepatitis B, perinatal, if the gestational mother received nucleic acid testing for HBV DNA during pregnancy, then indicate the result. For hepatitis C, perinatal, if the gestational mother received nucleic acid testing for HCV RNA (including qualitative or quantitative PCR, or genotype testing) during pregnancy, then indicate the result.
Att 10 – Disease-specific data	Question Revision	Mother Nucleic Acid Test Viral Load (Description: If the gestational parent received nucleic acid testing for HBV DNA during pregnancy, then indicate the viral load:) Conditions: Hepatitis	Change Description to be: If the gestational mother received nucleic acid testing for HBV DNA during pregnancy, then indicate the viral load:
Att 10 – Disease-specific data	Question Revision	Mother HBeAg Test (Description: Did the gestational parent receive HBeAg testing during pregnancy?) Conditions: Hepatitis	Change Description to be: Did the gestational mother receive HBeAg testing during pregnancy?
Att 10 – Disease-specific data	Question Revision	Mother HBeAg Test Result (Description: If the gestational parent received HBeAg testing during pregnancy, indicate the result.) Conditions: Hepatitis	Change Description to be: If the gestational mother received HBeAg testing during pregnancy, indicate the result.
Att 10 – Disease-specific data	Question Revision	Specimen From Mother or Infant (Description: Is the specimen from the gestational parent or the infant?) Conditions: Hepatitis	Change Description to be: Is the specimen from the gestational mother or the infant?
Att 10 – Disease-specific data	Question Deletion	Gender Identity (Description: A person’s internal sense of being a man, woman, both, or neither) Conditions: Hepatitis	Remove data element.
Att 10 – Disease-specific data	Question Revision	Total number of sex partners last 12 months? (Description: Total number of sex partners that the case patient has had in the last 12 months. Total partners equal the sum of all male, female, and transgender partners during the period.) Condition: STD (not congenital)	Change description to: Total number of sex partners that the case patient has had in the last 12 months.
Att 10 – Disease-specific data	Question Deletion	Transgender (Description: Patient identified as transgender (i.e., an individual’s personal sense of being male, female, or transgender). Condition: STD (not congenital)	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Sexual Orientation (Description: Patient identified sexual orientation (i.e., an individual's physical and/or emotional attraction to another individual of the same gender, opposite gender, or both genders).) *Note: There is a second sexual orientation data element that will continue being used. (Description: A person’s identification of their emotional, romantic, sexual, or affectional attraction to another person). Condition: STD (not congenital)	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Gender Identity (Description: A person’s internal sense of being a man, woman, both, or neither) Condition: STD (not congenital)	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Gender (Description: Patients Gender) Condition: Human Rabies	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Gender (Description: Gender) Condition: Listeria	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Gender Identity (Description: Do you currently describe yourself as male, female, or transgender?) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Sex with Transgender Female Partners (Description: Sex with transgender female partners?) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Number of Transgender Female Partners (Description: Number of transgender female partners or description if no number is provided) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Numerical Range of Female Transgender Partners (Description: If individual is unable to specify, provide a range of options for the number of transgender female partners) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Sex with Transgender Male Partners (Description: Sex with transgender male partners?) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Number of Transgender Male Partners (Description: Number of transgender male partners or description if no number is provided ) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Numerical Range of Transgender Male Partners (Description: If individual is unable to specify, provide a range of options for the number of transgender male partners) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Sex with Other Gender Identity Partners (Description: Sex with other gender identity partners?) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Number of Other Gender Identity Partners (Description: Number of other gender identity partners or description if no number is provided) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Deletion	Numerical Range of Other Identity Gender Partners (Description: If individual is unable to specify, provide a range of options for the number of other gender identity partners) Condition: mpox	Remove data element.
Att 10 – Disease-specific data	Question Revision	Sexual Orientation (Description: Patient identified sexual orientation (i.e., an individual's physical and/or emotional attraction to another individual of the same gender, opposite gender, or both genders).) Condition: mpox	Change description to: A person’s identification of their emotional, romantic, sexual, or affectional attraction to another person.