0920-0706 Support Statement-B

National Program of Cancer Registries

Program Evaluation Instrument

(NPCR-PEI)

[OMB no. 0920-0706] [January 31, 2025]

Supporting Statement B

Program Official/Contact

Trevia Brooks, MPA

Public Health Advisor

National Center for Chronic Disease Prevention and Health Promotion

Centers for Disease Control and Prevention

P: 770-488-5659

F: 770-488-4759

tnb9@cdc.gov

1/6/2025

TABLE OF CONTENTS

B. COLLECTIONS OF INFORMATION EMPLOYING STATISTICAL METHODS 3

B1. Respondent Universe and Sampling Methods 3

B2. Procedures for the Collection of Information 3

B3. Methods to Maximize Response Rates and Deal with No Response 3

B4. Tests of Procedures or Methods to be Undertaken 4

B5. Individuals Consulted on Statistical Aspects and Individuals Collecting and/or Analyzing Data 4

REFERENCES 4

ATTACHMENTS

Attachment 1 NPCR Program Evaluation Instrument-Paper

Attachment 2 NPCR Program Evaluation Instrument-Web Version

Attachment 3 Changes in the NPCR-PEI for 2026 and 2028

Attachment 4 60-Day Federal Register Notice

Attachment 5 Cancer Registries Amendment Act, Public Law 102-515

Attachment 6 Section 301 of the Public Health Service Act [42 U.S.C. 241]

Attachment 7 NPCR Program Standards

Attachment 8 List of 2022-2027 NPCR Awardees

Attachment 9 Sample Letter (with PEI Instructions) to NPCR Awardees

Attachment 10 NPCR Program Evaluation Results 2022

B. COLLECTIONS OF INFORMATION EMPLOYING STATISTICAL METHODS

B1. Respondent Universe and Sampling Methods

Respondents are 46 states, two territories, the District of Columbia, and the Pacific Islands Central Cancer Registries that receive CDC funds from the NPCR component of the DP22-2202 NOFO to create and/or enhance central cancer registries. Biennially, respondents will be notified that the NPCR-PEI is deployed and accessible via a secure website for a period of approximately two weeks. The estimated annualized number of respondents is 33 [(50 respondents annually *2 information collections)/3-year clearance period)].

Statistical methods for sampling are not employed.

B2. Procedures for the Collection of Information

CDC awardees will submit NPCR-PEI data to the contractor once every other year in even numbered years (years 1 and 3 of this clearance request). Information will be submitted to CDC via a secure, web-based instrument (Attachment 2). Each NPCR awardee will receive a letter with instructions (Attachment 9). The respondents will also have the option to complete the survey on paper (Attachment 1) and return it to the contractor by mail.

Respondents have consistently submitted their NPCR-PEI responses electronically at a rate of 100% and we anticipate this trend for future submissions. However, since we offer awardees the option to submit the NPCR-PEI via mail courier we expect no more than 10% paper submissions and at least a 90% electronic response rate.

Changes that will be implemented beginning in 2026 are summarized in Attachment 3. The contractor will perform quality control edits on the data, process the data, compile the data into a data file, and produce a secure web-based results display system, year 2. The contractor will also create individual and aggregate summary descriptive reports (Attachment 10) for the CCRs and CDC. All reports are reviewed by CDC before being made available to the CCRs. When the secure web-based results display system is made available by the contractor, data are then used for various statistical analyses.

B3. Methods to Maximize Response Rates and Deal with No Response

To maximize response rates, CDC performs a usability test of the web-based NPCR-PEI before it is made available online for the CCRs. The CCRs will have access to a technical support helpline supported by the contractor, and to the appropriate NPCR Program Consultant, for technical difficulties or questions encountered using the NPCR-PEI.

Incentives for the CCRs to complete and submit the NPCR-PEI include: 1) easy access to all information needed to complete the NPCR_PEI; and 2) an annual report containing both CCR-specific and aggregate summary NPCR-PEI data. There is no reason to believe that the response rate would be lower than 100% (a total of 50 grantees based on current cooperative agreement).

B4. Tests of Procedures or Methods to be Undertaken

The web-based PEI has been used previously for NPCR reporting (Attachment 2). The NPCR program standards were revised as listed in Attachment 7 to coincide with the NOFO DP22-2202. A CDC usability test expert, CDC-NPCR staff, and the contractor, have previously performed usability testing on the web-based NPCR-PEI. Several respondents provided feedback regarding how to improve NPCR-PEI for greater clarity, comprehension, and conciseness. These respondents are representatives from the 50 currently funded NPCR programs (Attachment 8). The NPCR-PEI instrument is not expected to change during the requested three-year clearance period.

B5. Individuals Consulted on Statistical Aspects and Individuals Collecting and/or Analyzing Data

Both CDC and the contracting staff will serve as statistical consultants for the project and will analyze data collected through this project. Contracting staff will serve as the data collectors. This staff includes a director to oversee the development and release of the PEI to respondents as well as a data analyst to ensure the integrity of the data collection and analysis.

REFERENCES