Privacy Narrative

Date
August 26, 2024

Information Collection Request - Privacy Narrative

National Program of Cancer Registries Program Evaluation Instrument (NPCR-PEI)
Title: ______________________________________________________________________________________
Trevia Brooks
Point of Contact: _____________________________________________________________________________

Description
The NPCR Program Evaluation Instrument (PEI) is a web-based survey instrument designed to evaluate
NPCR-funded registries' operational attributes and their progress towards meeting program standards. The PEI
also provides information about advanced activities and “Survey Feedback” assists CDC in improving the survey
instrument.
There is no potential for direct or deductive identification (name, social security number, date of birth,
or street address), including geographic data (e.g., county, census tract, zip code) collected by the
NPCR Program Evaluation Instrument (PEI). Therefore, NPCR-PEI data collection does not involve
collection of sensitive and/or personally identifiable information.
Based on CDC's Updated Guidelines for Evaluating Public Health Surveillance Systems, the PEI monitors the
integration of surveillance, registry operations and health information systems, the utilization of established
data standards, and the electronic exchange of health data. Data provided by this report can be used for public
health action, program planning and evaluation, and research hypothesis formulation. Specific knowledge
about operational activities in which NPCR registries are engaged is used to provide valuable insight to CDC
regarding programmatic efficiencies/deficiencies that have contributed to the success/challenges of the NPCR.
The results of this instrument inform CDC and NPCR Program Consultants where technical assistance is most
needed in order to continue to improve and enhance the NPCR.

Does this ICR request any PII?

Yes

✔ No

If yes, describe: _____________________________________

Does this ICR include a form that requires a Privacy Act Statement?
Does this ICR require a PIA?

Yes

✔

No

Yes

✔

No

If yes, does a signed PIA already exist?

C/I/O Approval
Associate Director for Science

Joan Redmondleonard -S
Comments:

Digitally signed by Joan
Redmond-leonard -S
Date: 2025.01.03
17:23:31 -05'00'

Information Systems Security Officer

Cynthia
Allen -S

Digitally signed by
Cynthia Allen -S
Date: 2025.01.03
11:02:00 -05'00'

Yes

✔

No