Form 0920-0706 PEI (Online)

National Program of Cancer Registries Program Evaluation Instrument

0920-0706 Attachment 2_NPCR PEI Survey 2026 -Electronic Version

NPCR - Program Evaluation Instrument (NPCR-PEI) (Online)

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2026 NPCR
Program
Evaluation
Instrument
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OMB NO. xxxx-xxxx
Exp. Date
xx/xx/xxxx

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Program Evaluation Instrument
Purpose Statement

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The NPCR Program Evaluation Instrument (PEI) is a web-based survey instrument designed to evaluate NPCR-funded
registries’ operational attributes and their progress towards meeting program standards. The PEI also provides
information about advanced activities and “Survey Feedback” assists CDC in improving the survey instrument.
Based on CDC’s Updated Guidelines for Evaluating Public Health Surveillance Systems, the PEI monitors the
integration of surveillance, registry operations and health information systems, the utilization of established data
standards, and the electronic exchange of health data. Data provided by this report can be used for public health action,
program planning and evaluation, and research hypothesis formulation.
Specific knowledge about operational activities in which NPCR registries are engaged is used to provide valuable
insight to CDC regarding programmatic efficiencies/deficiencies that have contributed to the success/challenges of the
NPCR. The results of this instrument inform CDC and NPCR Program Consultants where technical assistance is most
needed in order to continue to improve and enhance the NPCR.
Many of the questions in the 2026 PEI provide baseline data that can be used to measure compliance with the NPCR
Program Standards. These questions, and the standard they reference, are noted throughout the instrument (e.g.,
“Program Standard I. a.”) Using all available information as of December 31, 2025, the appropriate Central Cancer
Registry (CCR) staff should complete the PEI.

Deadline for completion: xxxx xx, xxxx

Enter The Survey

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Public reporting burden of this collection of information varies from 2 to 6 hours with an estimated average of 4 hours
per response. This includes the time for reviewing instructions, searching existing data sources, gathering and
maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or
sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB
control number. Send comments regarding this burden estimate or any other aspect of this collection of information,
including suggestions for reducing this burden to CDC/ASTDR Reports Clearance Officer; 1600 Clifton Road NE, MS
D-741, Atlanta, Georgia 30333, ATTN: PRA (XXXX-XXXX).

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Glossary

Survey Progress:
Administrative Data
Staffing
Legislative Authority

Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities
Survey Feedback
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Administrative Data
State/Territory

NPCR
reference
year

1995

Registry
reference
year

1995

Registry
Program
Director
DP22-2202
Cooperative
NU58DP00
Agreement
Number
Award
Amount
$
(Refer to
Notice of
Award (NoA))
CDC
Program
Consultant
Your name
Title
Phone
number
Status

In Progress

Date
Completed

9/30/2024

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Staffing (page 1 of 2)

Staffing
Legislative Authority
Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities
Survey Feedback

The following two questions use the concept of a “Full-time
Equivalent” or FTE. For each question, report the total number of
filled and vacant FTEs. Use the FTE guidelines below to convert
each position to the appropriate FTE. Please round each position
to the nearest quarter of an FTE. For example, 34 hours/week
converts to 0.75 FTE, whereas 35 hours/week converts to 1.0
FTE.
FTE Guidelines:
0.25 FTE = 10 hours/week
0.50 FTE = 20 hours/week
0.75 FTE = 30 hours/week
1.00 FTE = 40 hours/week
1. Indicate the number of filled and vacant FTEs by funding
category as of December 31, 2025.
You may include positions outside the registry ONLY if the
registry pays a portion of the salary. To compute partial FTEs,
please follow the FTE guidelines.

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Funding Category
Number of NPCRfunded, noncontracted FTE
positions
Number of NPCRfunded, contracted
FTE positions

Page 1 Staffing
Total Count FTEs
Filled

Vacant

Number of statefunded, noncontracted FTE
positions
Number of statefunded, contracted
FTE positions
Number of noncontracted FTE
positions funded by
other sources
Number of contracted
FTE positions funded
by other sources
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Staffing
Legislative Authority
Administration and Operations
Reporting Completeness

2. Indicate the number of filled and vacant FTEs by position as of December 31, 2025.
You may include time contributed by non-registry staff (i.e., chronic disease epidemiologist),
regardless of funding, in your total FTE count. To compute partial FTEs, please follow the FTE
guidelines.
Note: ODS credentials may be held by several registry positions and should be counted
accordingly.

Data Exchange
Data Content And Format

Page 2 Staffing
Position (FTE or percentage of FTE)

Data Quality Assurance
Data Use

Principal Investigator

Collaborative Relationships
Program Director
Other Surveillance Activities
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Program Manager

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Grants Manager or Budget Analyst

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ODS Quality Control Staff

Non-ODS Quality Control Staff
(i.e., registrar)

ODS Education /Training Staff

Epidemiologist or Data Analyst

Statisticians

IT Staff

Total Count FTEs
Filled

Vacant

GIS Specialists
Other staff, specify

Total Number of Staff

Total Number ODS (of total
number of staff)
Staffing Comments
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Legislative Authority

Staffing
Legislative Authority
Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use

3. Have any law/regulations been revised to address cancer reporting (including electronic reporting) in
the past two years?
Yes
No
Please describe:
Electronic reporting is defined as the automated, real-time exchange of case report information
between electronic health records (EHRs) and public health agencies. It collects and transfers data
from source documents by hospitals, physician offices, clinics, or laboratories in a standardized, coded
format that does not require manual data entry at the CCR level to create an abstracted record.
Legislative Authority Comments
You may add comments regarding your responses in the “Legislative Authority” section above.

Collaborative Relationships
Other Surveillance Activities
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Administration and Operations (page 1 of 2)

Staffing
Legislative Authority
Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use

4. NPCR program standards specify maintaining an operations
manual that describes registry operations, policies, and
procedures. As of December 31, 2025, what did your CCR
operations manual contain? Check all that apply.
Page 4 Administration and Operations
1. Reporting laws/regulations

Yes

2. List of reportable diagnoses

Yes

3. List of required data items

Yes

4. Procedures for data processing operations, including:

Collaborative Relationships

a. Monitoring timeliness of
reporting

Yes

Other Surveillance Activities

b. Receipt of data

Yes

c. Database management
including a description of the registry
operating system (software)

Yes

d. Conducting death clearance

Yes

e. Implementing and maintaining
the quality assurance or quality
control program

Yes

f. Conducting data exchange,
including a list of states with which
case-sharing agreements are in place

Yes

g. Conducting data linkages

Yes

h. Ensuring confidentiality and
data security, including disaster
planning

Yes

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i. Data release, including access to
and disclosure of information

Yes

j. Maintaining and updating the
operations manual

Yes

5. Reports that cover processes and
activities to monitor the registry
operations and database

Yes

6. Manuals used by reporting sources
that abstract and report cancer cases

Yes

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Staffing
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Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships

5. As of December 31, 2025, what reports did the CCR produce to monitor registry operations,
processes, and activities? Check all that apply.
Quality control report (facility)
Data completeness report (facility)
Timeliness of data report (facility)
Management reports
Operations calendar
Other, specify:
None of the above
Administration and Operations Comments
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above.

Other Surveillance Activities
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6. In the table below, record the number, by type, that are reporting to
the registry and the number that are reporting electronically as of
December 31, 2025. Please note instructions and definitions below.
Hospitals with a cancer registry (non-federal) (non-CoC) do not
include CoC hospitals. For example, a state/territory with 3 CoC
hospitals and 2 non-CoC hospitals with a cancer registry (nonfederal) would record 2 hospitals with a cancer registry (non-federal)
(non-CoC) in “Number Reporting to the Registry (Denominator)” and
3 CoC hospitals in “Number Reporting to the Registry
(Denominator)”.
For physician offices, use the counting method in the table below that
aligns with the registry’s own method for defining and tracking
physician reporting.
For types of Hospitals & Offices and Pathology Laboratories in the
table below that are not applicable to your state/territory (for example,
IHS hospitals), please record zero (0) in “Number Reporting to the
Registry” and record zero (0) in “Number Reporting Electronically”.

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Page 6 Reporting Completeness
Number
Number
Reporting to the
Reporting
Registry
Electronically
(Denominator)
(Numerator)

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HOSPITALS & OFFICES
Hospitals with a
cancer registry
(non-federal)
(non-CoC)
Hospitals
without a cancer
registry (nonfederal)
CoC Hospitals

Percentage

VA Hospitals

IHS Hospitals

Tribal Hospitals

Physician
Offices
PATHOLOGY LABORATORIES
In-state
independent
labs
Out-of-state
independent
labs
Other, specify

TOTAL
(Hospitals &
Offices,
Pathology
Laboratories)
Hospital cancer registry is defined as a single or joint institution that collects
data to be used internally and that would continue to do so regardless of the
central cancer registry requirements to collect and report cancer data.
Electronic reporting is defined as the automated, real-time exchange of case
report information between electronic health records (EHRs) and public health
agencies. It collects and transfers data from source documents by hospitals,
physician offices, clinics, or laboratories in a standardized, coded format that
does not require manual data entry at the CCR level to create an abstracted
record.
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Staffing
Legislative Authority

7. Please indicate how the following factors influenced the completeness and timeliness of your CCR’s 12month data submission (select one per item):

Administration and Operations

Law and Rules

Both
Contributing
Contributing Negative and
Factor
Factor Negative
Factor

This
Factor is
not
applicable
at the
registry

Fines and Penalties

Both
Contributing
Contributing Negative and
Factor
Factor Negative
Factor

This
Factor is
not
applicable
at the
registry

Outsourcing and Contracting

Both
Contributing
Contributing Negative and
Factor
Factor Negative
Factor

This
Factor is
not
applicable
at the
registry

Interstate Data Exchange

Both
Contributing
Contributing Negative and
Factor
Factor Negative
Factor

This
Factor is
not
applicable
at the
registry

Both
Contributing
Contributing Negative and
Factor
Factor Negative
Factor

This
Factor is
not
applicable
at the
registry

Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities
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Other factors, specify

Non-Analytic Cases
8. Do you require that non-analytic (classes 30-38) cases be reported to your CCR?
Yes
No
Department of Defense's Automated Central Tumor Registry (ACTUR)
9. On average, how many cases per diagnosis year do you estimate your CCR receives from the DoD’s
ACTUR dataset? (enter “0” if none)

Veterans Affairs (VA)
10a. On average, how many cases per diagnosis year do you estimate your CCR receives directly from the VA
Central Cancer Registry in your state? (enter “0” if none)

10b. How many VA facilities currently report to your CCR indirectly from the VA Central Cancer Registry in
Washington, DC? (enter “0” if none)

11. On average, how many cases per diagnosis year do you estimate are missed (i.e., never received) by your
CCR because of non-reporting by VA facilities? (enter “0” if none)

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Data Content And Format
Data Quality Assurance
Data Use

Industrial or Occupational History Data
12a. From what sources are you able to routinely collect data on industrial or occupational history
(without seeking additional data sources for only these variables)? Check all that apply.
Administrative records (e.g. billing or claims databases, or patient forms that are not part of the
medical record)
Medical records
Death certificate linkages
Other, specify:
Do not collect information on industrial or occupational history
12b. Do you conduct any additional activities (i.e., linkages with external databases) to collect or
improve upon industrial or occupational history information?

Collaborative Relationships
Yes
Other Surveillance Activities
Survey Feedback

No
Please describe:

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Electronic Data Exchange

Staffing
Legislative Authority

Data Exchange Format

Administration and Operations

13. Does your CCR use and require the following standardized, CDC-recommended data exchange
formats for the electronic exchange of cancer data from reporting sources:

Reporting Completeness

a. Hospital Reports (The NAACCR Standards for Cancer Registries Volume II: Data Standards and
Data Dictionary)?

Data Exchange
Data Content And Format
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Yes
No
b. Pathology reports (NAACCR Standards for Cancer Registries Volume V: Pathology Laboratory
Electronic Reporting)?
Yes
No
Not applicable, not receiving electronic pathology reports
c. Ambulatory healthcare providers using electronic health records (Implementation Guide for
Ambulatory Healthcare Provider Reporting to Central Cancer Registries)
Yes
No
Not applicable, not receiving Ambulatory healthcare provider reports
Interstate Data Exchange
14. Do your interstate data exchange procedures meet the following minimum criteria?
a. Within 12 months of the close of the diagnosis year, your CCR exchanges that year's data with other
central cancer registries where a data-exchange agreement is in place:
Yes
No
b. Your CCR collects data on all patients diagnosed and/or receiving first course treatment in your
registry’s state/territory regardless of residency:
Yes
No
c. The recommended frequency of data exchange is at least two times per year. Your CCR exchanges
data at the following frequency:

Annually
Biannually (two times per year)
Other, specify

d. Exchange agreements are in place with other central cancer registries:
Yes, with all bordering CCRs plus other non-adjacent CCRs
Yes, with all bordering CCRs but no others
Yes, with some bordering CCRs
Yes, includes National Interstate Data Exchange Agreement
No, no exchange agreements in place with neighboring states, but some are in place with
non-neighboring states
No, no exchange agreements in place
List all existing CCR agreements here:
e. What type of records do you transmit for interstate exchange?
Consolidated cases
Source records with text
Source records without text
f. Does it include all cases not exchanged previously?
Yes
No
g. Do the interstate data exchange files include the minimum data items specified in the current
Interstate Data Exchange Guidelines?
Yes
No
h. Do 99% of data submitted to other states pass an NPCR-prescribed set of standard edits?
Yes
No
i. Is the standardized, NPCR-recommended data exchange format used to transmit data to other
central cancer registries and CDC (The current NAACCR data exchange format specified in Standards
for Cancer Registries Volume II: Data Standards and Data Dictionary):
Yes
No
15. What type(s) of secure encrypted web-based system is used for sending or receiving cases through
interstate data exchange? Check all that apply.
Secure FTP
WebPlus
HTTPS
N-IDEAS
Secure encrypted e-mail
Other, specify:
Data Exchange Comments
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Data Content And Format

16. Is your CCR able to receive secure, encrypted cancer abstract data from reporting sources
electronically?
Yes
Currently being developed and/or implemented
No, not able to receive
17. What is the primary software system used to process and manage cancer data in your CCR?
Check only one.
CRS Plus
SEER DMS
In-House Software
Rocky Mountain Cancer Data Systems
Other, specify

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18. Which of the following Registry Plus programs do you use? Check all that apply.
Abstract Plus
Prep Plus
CRS Plus
Link Plus
Web Plus
Exchange Plus
eMaRC Plus (ePath Reporting Module only)
eMaRC Plus (Physician Reporting Module only)
eMaRC Plus (Both ePath and Physician Reporting Modules)
None of the above
Data Content and Format Comments
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Data Quality Assurance (page 1 of 3)

Staffing
Legislative Authority
Administration and Operations

19. Please respond to each of the following statements to describe your CCR's
quality assurance program:
Page 11 Data Quality Assurance
A designated ODS is responsible for the quality
assurance program

Yes

Data Exchange

Qualified, experienced ODS staff conduct quality
assurance activities

Yes

Data Content And Format

A designated ODS education/training coordinator
provides training to CCR staff and reporting
sources to ensure high quality data

Yes

At least once every 5 years, case-finding and/or
re-abstracting audits from a sampling of source
documents are conducted for each hospital-based
reporting facility. This may include external audits
(NPCR/SEER)

Yes

Data consolidation procedures are performed
consistently from all source records

Yes

Reporting Completeness

Data Quality Assurance
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Other Surveillance Activities
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20. In the past year, which of the following type of quality control audits or activities
did your CCR conduct? Definitions below for reference. Check all that apply.
Case finding
Re-abstracting
Re-coding
Visual editing and/or visual review
Data Item Consolidation
Other, specify:
Case finding is defined as the process of identifying all cases to be included in the
registry’s database.
Re-abstracting is defined as use of source record(s) to abstract and compare results.
Re-coding is defined as use of the submitted abstract’s text information to assign
codes and compare results.
Visual editing/visual review is defined as visual comparison of coded fields to text.
Data item consolidation is defined as combining data from multiple sources to

produce a single 'best' value for data items.
21. How often does your CCR provide feedback to reporting facilities on the quality,
completeness, and timeliness of their data?
Quarterly
Every 6 months
Annually
Other, specify

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Record Consolidation
22. Does your CCR perform record consolidation on the following?
Patient

Electronic

Manual

Both

Neither

Data Exchange

Treatment

Electronic

Manual

Both

Neither

Data Content And Format

Follow-up

Electronic

Manual

Both

Neither

Reporting Completeness

Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities
Survey Feedback
Validation

Death Clearance
23. Although death certificate processes require matches on all underlying causes of
death, does your CCR match all causes of death against your registry data to identify
a reportable cancer?
Yes
No
24. During the death certificate linkage, does your CCR match by tumor
(site/histology) and not just by patient identifying information?

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Yes
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No
25a. Does your CCR update the CCR database following death certificate
matching within 3 months of linkage?
Death information (vital status
and cause of death)

Yes

Missing demographic
information

Yes

25b. If yes, what percentage(s) of the updates are performed manually or
electronically? (Provide best estimate. There may be some overlap between
automation and manual review.)

Page 12 Data Quality Assurance
Manually (%)

Electronically (%)

Death information
Demographic Information

Edits
26a. After your CCR provides an edit set to reporting facilities and/or vendors to use
before data submission, does your CCR require facilities to run edits before they
submit their data to the registry?
Yes
No
Other, specify:

26b. Please choose the option below that most accurately represents your CCR’s
established threshold for percent of records passing edits.
100%
90% or greater
80% or greater
Less than 80%
Other, specify:

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Linkages
27. NPCR program standards specify performing National Death Index (NDI) linkage on an annual
basis. How often does your CCR link to the NDI? Check only one.
Annually
Biannually (two times per year)
Every other year
Other, specify:

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Other Surveillance Activities
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28. For which of the following has the NDI linkage proven to be useful? Check all that apply.
Survivorship
Data quality
Research
Other, specify:
Not applicable
29. Which databases did your CCR link records in 2024-2025 for follow-up or some other purpose?
Check all that apply.
All Payer Claims Database (APCD)
CDC's National Breast and Cervical Cancer Early Detection Program (NBCCEDP)
CDC’s Colorectal Cancer Control Program (CRCCP)
Department of Motor Vehicles (DMV)
Department of Voter Registration
Hospital Disease Indices
Hospital Discharge Database
Hospital Radiation Therapy Dept.
Indian Health Service (IHS)
Insurance Claim Databases (i.e., BCBS, Kaiser, Managed Care Organization, fee-for-service)
Medicaid
Medicare (Health Care Financing Administration)
Medicare Physician Identification and Eligibility Registry
National Death Index (NDI)
State Vital Statistics
Social Security
Other, specify:
None

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30. Within 12 months of the end of the diagnosis year, with data that are 90%
complete, does your CCR produce:
An electronic data file of incidence counts, rates,
or proportions by SEER site groups?

Yes

A report of incidence counts, rates, or
proportions by SEER site groups?

Yes

31. Within 24 months of the end of the diagnosis year, with data that are 95%
complete, does your CCR produce:
Reports on age-adjusted incidence and mortality
rates using SEER site groups? Age, sex, race,
ethnicity, and geographic area are stratified
where applicable.

Yes

Biennial reports on stage and incidence by
geographic area, emphasizing screeningamenable cancers and cancers associated with
modifiable risk factors?

Yes

32. Indicate which cancer screening and/or cancer-related risk factors were covered
in the CCR’s reports. Check all that apply.
Alcohol consumption
Physical inactivity
Nutrition
Tobacco use
Obesity
HPV vaccination
Other, specify:
33. Indicate the most recent diagnosis year an electronic data file or report was made
available to the public:
Year:
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Staffing
Legislative Authority
Administration and Operations
Reporting Completeness

34a. Indicate the number of times between January 1, 2025, to
December 31, 2025, the CCR, state health department, or its
designee used registry data in each category to understand the
cancer burden in support of cancer prevention and control
priorities. Please provide best estimate. Enter ‘0’ if not
applicable.

Data Exchange
Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities
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Data Use Category

Page 15 Data Use
Number per Year

Epidemiologic
studies
Survivorship
programs
Other, specify:
34b. Have any of the above uses of data been included in a journal
publication in the last two years?
Yes
No
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Data Use (page 3 of 3)

35. Between January 1, 2025, to December 31, 2025, which data use activities did the CCR participate
in? Check all that apply.
Created written publications (i.e., journal articles, annual report, other reports)
Updated website
Shared oral or poster presentation(s) at local or national conference
Released data file
Held education or training meeting
Issued press releases or statements
Created or updated data dashboard, map, or other data visualization
None of the above
Other, specify:
36. Between January 1, 2025, to December 31, 2025, in what ways did your CCR use U.S. Cancer
Statistics (USCS) data? Check all that apply.
Written publications (i.e., journal articles, annual report, other reports)
Oral or poster presentation(s) at local or national conference
CCR's data dashboard, map, or other data visualization
Collaborative activities with NBCCEDP, NCCCP, and/or chronic disease partners
Health event investigations (i.e., cancer cluster investigations)
Needs assessments/program planning (i.e., Community Cancer Profiles)
Analyses or studies (i.e., epidemiologic studies, survival analyses, clinical studies, comparative
analyses)
Program evaluation
Routine data requests
USCS data was not used between January 1, 2025, to December 31, 2025
Other, specify:
Data Use Section Comments
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Advisory Committee
37a. As of December 31, 2025, has your CCR established and regularly convened an
advisory committee to assist in building consensus, cooperation, and planning for the
registry?
Yes
No
37b. The advisory committee includes representation from: Check all that apply.
American Cancer Society
American College of Surgeons
Vital Statistics
Hospital cancer registrars (ODS)
Laboratory personnel
Cancer survivors
Researchers
Pathologists
Medical/Radiation oncologists
Other specialty physicians (i.e., dermatologists, gastroenterologists, urologists,
etc.)
Representatives from cancer prevention and control programs
Other, specify:
37c. How often does the advisory committee convene? Check only one.
Quarterly
Annually
Biannually
Other, specify:

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Staffing
Legislative Authority
Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships

Cancer & Other Chronic Disease Programs
38. In what ways does your CCR collaborate with your state's National Breast and Cervical Cancer
Early Detection Program (NBCCEDP), National Comprehensive Cancer Control Program (NCCCP),
and other chronic disease programs? Check all that apply.
Provide assistance in staging NBCCEDP cases
Regular meetings with NBCCEDP, NCCCP, and chronic disease
Provide trainings to NBCCEDP, NCCCP, and chronic disease
Provide data to NBCCEDP, NCCCP, and chronic disease
Provide material for publications to NBCCEDP, NCCCP, and chronic disease
Provide subject matter expertise or technical assistance to NBCCEDP, NCCCP, and chronic disease
Data linkage
Partner on collaborative projects
Other, specify:

Other Surveillance Activities
None of the above, explain
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Health Department
39. With which other Department of Health programs does your CCR collaborate? Check all that
apply.
Asthma
Diabetes
Environmental Health
Heart Disease and Stroke Prevention
Infectious disease (HIV/AIDS, HPV, hepatitis)
Immunization
Oral Health
Physical Activity and Nutrition/Obesity
Radiation Control
Tobacco Control
Other, specify:
Collaborative Relationship Section Comments
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Other Surveillance Activities (page 1 of 2)

Staffing
Legislative Authority
Administration and Operations
Reporting Completeness
Data Exchange

40. If your CCR receives electronic pathology reports, in which format are these
received? Check all that apply.
NAACCR, HL7 Format (Volume V), Version 2.x
NAACCR, Pipe Delimited Format (Volume V), Version 2.x
NAACCR, HL7 Format (NAACCR Volume II, Version 11, Chapter VI)
NAACCR, Pipe Delimited Format (NAACCR Volume II, Version 10,Chapter VI)
Other, specify:

Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities
Survey Feedback
Validation
Review
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Not applicable
41. For which of the following cancer surveillance needs has your CCR been in
contact with your Health Department's infectious disease program staff? Check all
that apply.
Pathology laboratory reporting
Physician disease reporting
Other healthcare data reporting, specify:
None of the above
42. Which of these did the CCR conduct in the past year (January 1, 2025 –
December 31, 2025)? Check all that apply.
Survival analysis
Quality of care studies
Cancer cluster investigation
Clinical study
Geocoding
Research published in peer reviewed journals using registry data
Created data dashboard, map, or other data visualization
Other innovative uses of registry data, specify:
None of the above
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43. Does your registry have a system in place for early case capture (rapid case ascertainment)?
Yes
No
44a. If Yes, is early case capture performed for:
All cases
Subset of cases (i.e., pediatric cancer), specify:
Special Studies
Other, specify:
44b. If yes, within what time frame are cases reported?
30 days
60 days
Study dependent, specify
Other, specify
Time Frame Study, Specify
Time Frame Other, Specify
Other Surveillance Activities Section Comments
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Administrative Data

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Staffing
Legislative Authority
Administration and Operations
Reporting Completeness
Data Exchange
Data Content And Format
Data Quality Assurance
Data Use

45. Please indicate your experience completing the 2026 NPCR Program Evaluation Instrument:
a. All or most of the questions are clearly stated.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
b. I understand the importance of all or most of the questions.
Strongly Agree

Collaborative Relationships

Agree

Other Surveillance Activities

Neutral

Survey Feedback
Validation
Review
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Disagree
Strongly Disagree
c. I consider the time spent completing the instrument to be a worthwhile contribution to NPCR and the
cancer surveillance community.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
d. Our registry uses the data collected in this instrument.
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
46. I would like to participate in discussions regarding the NPCR Program Evaluation Instrument
Yes
No

provide name, email, phone number
47. I have the following suggestions or revisions to the NPCR Program Evaluation Instrument:

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Administration and Operations

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The following questions have missing responses. Please use the
navigation menu to find the question and provide a response.
Module

Question

User Data

Data Content And Format
Data Quality Assurance
Data Use
Collaborative Relationships
Other Surveillance Activities

Error
Response
is missing

Edit

Reporting Completeness
Data Exchange

Variable Name

Response
is missing

User Data

Edit
Response
is missing

User Data

Edit
Response
is missing

User Data

Edit

Survey Feedback
Validation
Review
Save and Logout

Response
is missing

User Data

Edit
Response
is missing

User Data

Edit
Response
is missing

User Data

Edit

Staffing

Number of NPCRfunded, nonResponse
contracted FTE
is missing
positions: Filled

Edit

Staffing

Number of NPCRfunded, nonResponse
contracted FTE
is missing
positions: Vacant

Number of NPCRResponse
funded, contracted
is missing
FTE positions: Filled

Number of NPCRfunded, contracted Response
FTE positions:
is missing
Vacant

Edit

Staffing

Edit

Staffing

Edit

Staffing

Number of statefunded, noncontracted FTE
positions: Filled

Response
is missing

Number of statefunded, noncontracted FTE
positions: Vacant

Response
is missing

Edit

Staffing

Edit

Staffing

Number of stateResponse
funded, contracted
is missing
FTE positions: Filled

Number of statefunded, contracted Response
FTE positions:
is missing
Vacant

Number of noncontracted FTE
Response
positions funded by is missing
other sources: Filled

Number of noncontracted FTE
Response
positions funded by
is missing
other sources:
Vacant

Edit

Staffing

Edit

Staffing

Edit

Staffing

Edit

Staffing

Number of
contracted FTE
Response
positions funded by is missing
other sources: Filled

Number of
contracted FTE
Response
positions funded by
is missing
other sources:
Vacant

Principal
Response
Investigator: Filled is missing

Principal
Response
Investigator: Vacant is missing

Edit

Staffing

Edit
Staffing

Program Director:
Filled

Response
is missing

Program Director:
Vacant

Response
is missing

Program Manager: Response
Filled
is missing

Program Manager: Response
Vacant
is missing

Grants Manager or
Response
Budget Analyst:
is missing
Filled

Grants Manager or
Response
Budget Analyst:
is missing
Vacant

ODS Quality Control Response
Staff: Filled
is missing

ODS Quality Control Response
Staff: Vacant
is missing

Edit
Staffing

Edit

Staffing

Edit

Staffing

Edit
Staffing

Edit

Staffing

Non-ODS Quality
Control Staff (i.e.,
registrar): Filled

Response
is missing

Non-ODS Quality
Control Staff (i.e.,
registrar): Vacant

Response
is missing

ODS
Response
Education/Training
is missing
Staff: Filled

ODS
Response
Education/Training
is missing
Staff: Vacant

Epidemiologist or Response
Data Analyst: Filled is missing

Epidemiologist or Response
Data Analyst: Vacant is missing

Edit

Staffing

Edit

Staffing

Edit

Staffing

Edit
Staffing

Statisticians: Filled

Response
is missing

Statisticians: Vacant

Response
is missing

IT Staff: Filled

Response
is missing

IT Staff: Vacant

Response
is missing

GIS Specialists:
Filled

Response
is missing

GIS Specialists:
Vacant

Response
is missing

Edit
Staffing

Edit

Staffing

Total Number ODS
Response
(of totoal number of
is missing
staff): Filled

Total Number ODS
Response
(of totoal number of
is missing
staff): Vacant

Edit

Staffing

Edit
Legislative
Authority

Must
select
one

Edit
Administration
and
Operations

1. Reporting
laws/regulations

Must
select
one

2. List of reportable
diagnoses

Must
select
one

3. List of required
data items

Must
select
one

a. Monitoring
timeliness of
reporting

Must
select
one

b. Receipt of data

Must
select
one

c. Database
management
including a
description of the
registry operating
system (software)

Must
select
one

d. Conducting
death clearance

Must
select
one

Edit
Administration
and
Operations

Edit

Administration
and
Operations

Edit
Administration
and
Operations

Edit

Administration
and
Operations

e. Implementing
and maintaining the
quality assurance or
quality control
program

Must
select
one

f. Conducting
data exchange,
including a list of
states with which
case-sharing
agreements are in
place

Must
select
one

g. Conducting
data linkages

Must
select
one

h. Ensuring
confidentiality and
data security,
including disaster
planning

Must
select
one

i. Data release,
including access to
and disclosure of
information

Must
select
one

j. Maintaining and
updating the
operations manual

Must
select
one

5. Reports that cover
processes and
activities to monitor
the registry
operations and
database

Must
select
one

6. Manuals used by
reporting sources
that abstract and
report cancer cases

Must
select
one

Edit

Administration
and
Operations

Edit
Administration
and
Operations

Edit

Administration
and
Operations

Edit
Administration
and
Operations

Edit

Administration
and
Operations

Edit
Administration
and
Operations

Must
select at
least one

Edit

Reporting
Completeness

Hospitals with a
cancer registry (nonfederal) (non-CoC): Response
Number Reporting to is missing
the Registry
(Denominator)

Hospitals with a
cancer registry (nonfederal) (non-CoC): Response
Number Reporting is missing
Electronically
(Numerator)

Hospitals with a
cancer registry (non- Response
federal) (non-CoC): is missing
Percentage

Hospitals without a
cancer registry (nonfederal): Number Response
Reporting to the is missing
Registry
(Denominator)

Hospitals without a
cancer registry (nonfederal): Number Response
Reporting
is missing
Electronically
(Numerator)

Hospitals without a
Response
cancer registry (nonis missing
federal): Percentage

CoC Hospitals:
Number Reporting to Response
the Registry
is missing
(Denominator)

CoC Hospitals:
Number Reporting Response
Electronically
is missing
(Numerator)

Edit

Reporting
Completeness

Edit

Reporting
Completeness

Edit

Reporting
Completeness

Edit

Reporting
Completeness

Edit
Reporting
Completeness

Edit

Reporting
Completeness

Edit

Reporting
Completeness

Edit

Reporting
Completeness

CoC hospitals:
Percentage

Response
is missing

Edit

Reporting
Completeness

VA Hospitals:
Number Reporting to Response
the Registry
is missing
(Denominator)

VA Hospitals:
Number Reporting Response
Electronically
is missing
(Numerator)

Edit

Reporting
Completeness

Edit
Reporting
Completeness

VA hospitals:
Percentage

Response
is missing

Edit

Reporting
Completeness

IHS Hospitals:
Number Reporting to Response
the Registry
is missing
(Denominator)

IHS Hospitals:
Number Reporting Response
Electronically
is missing
(Numerator)

Edit

Reporting
Completeness

Edit
Reporting
Completeness

IHS hospitals:
Percentage

Response
is missing

Edit

Reporting
Completeness

Tribal Hospitals:
Number Reporting to Response
the Registry
is missing
(Denominator)

Tribal Hospitals:
Number Reporting Response
Electronically
is missing
(Numerator)

Edit

Reporting
Completeness

Edit
Reporting
Completeness

Edit

Tribal hospitals:
Percentage

Response
is missing

Reporting
Completeness

Physician Offices:
Number Reporting to Response
the Registry
is missing
(Denominator)

Physician Offices:
Number Reporting Response
Electronically
is missing
(Numerator)

Physician Offices:
Percentage

Edit

Reporting
Completeness

Edit
Reporting
Completeness

Response
is missing

Edit

Reporting
Completeness

In-state independent
labs: Number
Response
Reporting to the
is missing
Registry
(Denominator)

In-state independent
labs: Number
Response
Reporting
is missing
Electronically
(Numerator)

In-state independent Response
labs: Percentage is missing

Out-of-state
independent labs:
Response
Number Reporting to
is missing
the Registry
(Denominator)

Out-of-state
independent labs:
Response
Number Reporting
is missing
Electronically
(Numerator)

Out-of-state
independent labs:
Percentage

Edit

Reporting
Completeness

Edit
Reporting
Completeness

Edit

Reporting
Completeness

Edit

Reporting
Completeness

Edit
Reporting
Completeness

Response
is missing

Edit
Reporting
Completeness

TOTAL (Hospitals & Response
Offices, Pathology is missing
Laboratories):

Number Reporting to
the Registry
(Denominator)

Edit

Reporting
Completeness

TOTAL (Hospitals &
Offices, Pathology
Laboratories):
Response
Number Reporting is missing
Electronically
(Numerator)

TOTAL (Hospitals &
Offices, Pathology Response
Laboratories):
is missing
Percentage

Edit

Reporting
Completeness

Edit
Reporting
Completeness

Law and Rules

Must
select
one

Fines and Penalties

Must
select
one

Outsourcing and
Contracting

Must
select
one

Interstate Data
Exchange

Must
select
one

Edit
Reporting
Completeness

Must
select
one

Response
is missing

10a

Response
is missing

13b

Response
is missing

Edit
Reporting
Completeness

Response
is missing

15a

Must
select at
least one

15b

Must
select
one

17a

Must
select
one

17b

Must
select
one

17c

Must
select
one

18a

Must
select
one

18b

Must
select
one

18c

Must
select
one

18d

Must
select
one

18f

Must
select
one

Edit
Reporting
Completeness

Edit
Electronic
Data
Exchange

18g

Must
select
one

18h

Must
select
one

18j

Must
select
one

Must
select at
least one

Must
select
one

Must
select at
least one

Edit
Electronic
Data
Exchange

Edit
Data Content
And Format

Edit

Data Quality
Assurance

A designated ODS is
responsible for the
quality assurance
program

Must
select
one

Qualified,
experienced ODS
staff conduct quality
assurance activities

Must
select
one

A designated ODS
education/training
coordinator provides
training to CCR staff
and reporting
sources to ensure
high quality data

Must
select
one

Edit

Data Quality
Assurance

Edit

Data Quality
Assurance

Edit

Data Quality
Assurance

At least once every 5
years, case-finding
and/or re-abstracting
audits from a
sampling of source
documents are
conducted for each
hospital-based
reporting facility.
This may include
external audits
(NPCR/SEER)

Must
select
one

Data consolidation
procedures are
performed
consistently from all
source records

Must
select
one

Edit

Data Quality
Assurance

Edit
Data Quality
Assurance

Must
select at
least one

Must
select
one

Edit
Data Quality
Assurance

Patient

Must
select
one

Treatment

Must
select
one

Follow-up

Must
select
one

Edit
Data Quality
Assurance

Must
select
one

Edit
Data Quality
Assurance

28a

Death information
(vital status and
cause of death)

Must
select
one

28a

Missing
demographic
information

Must
select
one

Edit
Data Quality
Assurance

26a

Must
select
one

26b

Must
select
one

Must
select at
least one

Edit
Data Quality
Assurance

Edit

Data Use

An electronic data
file of incidence
counts, rates, or
proportions by SEER
site groups?

Must
select
one

A report of
incidence counts,
rates, or proportions
by SEER site
groups?

Must
select
one

Edit

Data Use

Edit
Data Use

Reports on ageadjusted incidence
and mortality rates
using SEER site
groups? Age, sex,

Must
select
one

race, ethnicity, and
geographic area are
stratified where
applicable.

Edit

Data Use

Biennial reports on
stage and incidence
by geographic area,
emphasizing
screening-amenable
cancers and cancers
associated with
modifiable risk
factors?

Must
select
one

Edit

Data Use

Must
select at
least one

Edit
Data Use

33a

Year:

Response
is missing

Edit

Data Use

Comprehensive
cancer control
detailed
Response
incidence/mortality is missing
estimates: Number
per Year

Detailed
incidence/mortality
Response
by stage and
is missing
geographic area:
Number per Year

Collaboration, as
defined in DP222202, with cancer
Response
screening programs
is missing
for breast, colorectal,
and cervical cancer:
Number per Year

Health event
investigation(s) (i.e.,
Response
cancer cluster
is missing
investigations):
Number per Year

Edit

Data Use

Edit

Data Use

Edit

Data Use

Edit

Data Use

Needs
assessment/program
Response
planning (i.e.,
is missing
Community Cancer
Profiles)

Program evaluation: Response
Number per Year is missing

Epidemiologic
Response
studies: Number per
is missing
Year

Edit
Data Use

Edit

Data Use

Edit
Data Use

Survivorship
programs

Response
is missing

Edit

Data Use

35a

Must
select
one

Must
select at
least one

Must
select
one

Edit

Data Use

Edit

Data Use

Edit
Other
Surveillance
Activities

Edit

Collaborative
Relationships

38a

Must
select
one

38c

Must
select
one

Must
select at
least one

48a

Must
select
one

48b

Must
select
one

48d

Must
select
one

48e

Must
select
one

Edit
Collaborative
Relationships

Edit
Survey
Feedback

Edit

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2026 - Program Evaluation Instrument
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Survey

Questionnaire (pdf version)

Glossary

Survey Progress:
Administrative Data
Staffing
Legislative Authority

Administration and Operations
Reporting Completeness

Export & Print
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of your responses are correct, then click the "Submit" button to
submit your survey.
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Staffing

Collaborative Relationships

1. Indicate the number of filled and vacant FTEs by funding
category as of December 31, 2025.
You may include positions outside the registry ONLY if the registry
pays a portion of the salary. To compute partial FTEs, please follow
the FTE guidelines. The following two questions use the concept of a
“Full-time Equivalent” or FTE. For each question, report the total
number of filled and vacant FTEs. Use the FTE guidelines below to
convert each position to the appropriate FTE. Please round each
position to the nearest quarter of an FTE. For example, 34
hours/week converts to 0.75 FTE, whereas 35 hours/week converts
to 1.0 FTE.

Other Surveillance Activities

FTE Guidelines:

Data Exchange
Data Content And Format
Data Quality Assurance
Data Use

Survey Feedback
Validation
Review
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0.25 FTE = 10 hours/week
0.50 FTE = 20 hours/week
0.75 FTE = 30 hours/week
1.00 FTE = 40 hours/week
Funding Category
Number of NPCR-funded, non-contracted FTE
positions
Number of NPCR-funded, contracted FTE
positions
Number of state-funded, non-contracted FTE
positions
Number of state-funded, contracted FTE
positions
Number of non-contracted FTE positions
funded by other sources

Filled Vacant

Number of contracted FTE positions funded by
other sources
2. Indicate the number of filled and vacant FTEs by position as
of December 31, 2025.
You may include time contributed by non-registry staff (i.e., chronic
disease epidemiologist), regardless of funding, in your total FTE
count. To compute partial FTEs, please follow the FTE guidelines.
Note: ODS credentials may be held by several registry positions and
should be counted accordingly.
Position (FTE or percentage of FTE)

Filled Vacant

Principal Investigator
Program Director
Program Manager
Grants Manager or Budget Analyst
ODS Quality Control Staff
Non-ODS Quality Control Staff (i.e., registrar)
ODS Education /Training Staff
Epidemiologist or Data Analyst
Statisticians
IT Staff
GIS Specialists
Other staff, specify
Total Number of Staff

0.00

Total Number ODS (of total number of staff)
Staffing Comments
You may add comments regarding your responses in the “Staffing”
section above.
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Legislative Authority
3. Have any law/regulations been revised to address cancer reporting
(including electronic reporting) in the past two years?

Electronic reporting is defined as the automated, real-time exchange
of case report information between electronic health records (EHRs)
and public health agencies. It collects and transfers data from source
documents by hospitals, physician offices, clinics, or laboratories in a
standardized, coded format that does not require manual data entry at
the CCR level to create an abstracted record.
Legislative Authority Comments
You may add comments regarding your responses in the “Legislative
Authority” section above.
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Administration and Operations
4. NPCR program standards specify maintaining an operations
manual that describes registry operations, policies, and procedures.

As of December 31, 2025, what did your CCR operations manual
contain? Check all that apply.
1. Reporting laws/regulations
2. List of reportable diagnoses
3. List of required data items
4. Procedures for data processing operations, including:
a. Monitoring timeliness of reporting
b. Receipt of data
c. Database management including a description of the
registry operating system (software)
d. Conducting death clearance
e. Implementing and maintaining the quality assurance or
quality control program
f. Conducting data exchange, including a list of states with
which case-sharing agreements are in place
g. Conducting data linkages
h. Ensuring confidentiality and data security, including disaster
planning
i. Data release, including access to and disclosure of
information
j. Maintaining and updating the operations manual
5. Reports that cover processes and activities to monitor the
registry operations and database
6. Manuals used by reporting sources that abstract and report
cancer cases
5. As of December 31, 2025, what reports did the CCR produce to
monitor registry operations, processes, and activities? Check all that
apply.

Administration and Operations Comments
You may add comments regarding your responses in the
“Administration and Operations” section above.
Edit
Reporting Completeness
6. In the table below, record the number, by type, that are
reporting to the registry and the number that are reporting
electronically as of December 31, 2025. Please note instructions
and definitions below.
Hospitals with a cancer registry (non-federal) (non-CoC) do
not include CoC hospitals. For example, a state/territory with
3 CoC hospitals and 2 non-CoC hospitals with a cancer
registry (non-federal) would record 2 hospitals with a cancer
registry (non-federal) (non-CoC) in “Number Reporting to the
Registry (Denominator)” and 3 CoC hospitals in “Number
Reporting to the Registry (Denominator)”.
For physician offices, use the counting method in the table
below that aligns with the registry’s own method for defining
and tracking physician reporting.
For types of Hospitals & Offices and Pathology Laboratories
in the table below that are not applicable to your
state/territory (for example, IHS hospitals), please record zero

(0) in “Number Reporting to the Registry” and record zero (0)
in “Number Reporting Electronically”.
Number
Number
Reporting to
Reporting
Percentage
the Registry Electronically
(Denominator) (Numerator)
Hospitals with a
cancer registry
(non-federal)
(non-CoC)
Hospitals without
a cancer registry
(non-federal)
CoC Hospitals
VA Hospitals
IHS Hospitals
Tribal Hospitals
Physician Offices
PATHOLOGY LABORATORIES
In-state
independent labs
Out-of-state
independent labs
Other, specify
TOTAL (Hospitals
& Offices,
Pathology
Laboratories)
7. Please indicate how the following factors influenced the
completeness and timeliness of your CCR’s 12-month data
submission (select one per item):
Law and Rules
Fines and Penalties
Outsourcing and Contracting
Interstate Data Exchange
Other factors, specify
8. Do you require that non-analytic (classes 30-38) cases be reported
to your CCR?
Non-Analytic Cases

9. On average, how many cases per diagnosis year do you estimate
your CCR receives from the DoD’s ACTUR dataset? (enter “0” if
none)
Department of Defense's Automated Central Tumor Registry
(ACTUR)

10a. On average, how many cases per diagnosis year do you
estimate your CCR receives directly from the VA Central Cancer
Registry in your state? (enter “0” if none)
Veterans Affairs (VA)

10b. How many VA facilities currently report to your CCR indirectly
from the VA Central Cancer Registry in Washington, DC? (enter
“0” if none)
11. On average, how many cases per diagnosis year do you estimate
are missed (i.e., never received) by your CCR because of nonreporting by VA facilities? (enter “0” if none)
12a. From what sources are you able to routinely collect data on
industrial or occupational history (without seeking additional data
sources for only these variables)? Check all that apply.Industrial or
Occupational History Data

12b. Do you conduct any additional activities (i.e., linkages with
external databases) to collect or improve upon industrial or
occupational history information?

Reporting Completeness Comments
You may add comments regarding your responses in the “Reporting
Completeness” section above.
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Electronic Data Exchange
13. Does your CCR use and require the following standardized, CDCrecommended data exchange formats for the electronic exchange of
cancer data from reporting sources:Data Exchange Format
a. Hospital Reports (The NAACCR Standards for Cancer Registries
Volume II: Data Standards and Data Dictionary)?
b. Pathology reports (NAACCR Standards for Cancer Registries
Volume V: Pathology Laboratory Electronic Reporting)?
c. Ambulatory healthcare providers using electronic health records
(Implementation Guide for Ambulatory Healthcare Provider Reporting
to Central Cancer Registries)
14. Do your interstate data exchange procedures meet the following
minimum criteria?
Interstate Data Exchange
a. Within 12 months of the close of the diagnosis year, your CCR
exchanges that year's data with other central cancer registries where
a data-exchange agreement is in place:
b. Your CCR collects data on all patients diagnosed and/or receiving
first course treatment in your registry’s state/territory regardless of
residency:
c. The recommended frequency of data exchange is at least two times
per year. Your CCR exchanges data at the following frequency:

d. Exchange agreements are in place with other central cancer
registries:

e. What type of records do you transmit for interstate exchange?
f. Does it include all cases not exchanged previously?
g. Do the interstate data exchange files include the minimum data
items specified in the current Interstate Data Exchange Guidelines?
h. Do 99% of data submitted to other states pass an NPCR-prescribed
set of standard edits?
i. Is the standardized, NPCR-recommended data exchange format
used to transmit data to other central cancer registries and CDC (The
current NAACCR data exchange format specified in Standards for
Cancer Registries Volume II: Data Standards and Data Dictionary):
15. What type(s) of secure encrypted web-based system is used for
sending or receiving cases through interstate data exchange? Check
all that apply.

Data Exchange Comments
You may add comments regarding your responses in the “Data
Exchange” section above.
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Data Content And Format
16. Is your CCR able to receive secure, encrypted cancer abstract
data from reporting sources electronically?
17. What is the primary software system used to process and manage
cancer data in your CCR? Check only one.

18. Which of the following Registry Plus programs do you use? Check
all that apply.
Data Content and Format Comments
You may add comments regarding your responses in the “Data
Content and Format” section above.
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Data Quality Assurance
19. Please respond to each of the following statements to describe
your CCR's quality assurance program:

A designated ODS is responsible for the quality assurance
program
Qualified, experienced ODS staff conduct quality assurance
activities
A designated ODS education/training coordinator provides
training to CCR staff and reporting sources to ensure high quality
data
At least once every 5 years, case-finding and/or re-abstracting
audits from a sampling of source documents are conducted for
each hospital-based reporting facility. This may include external
audits (NPCR/SEER)
Data consolidation procedures are performed consistently from
all source records
20. In the past year, which of the following type of quality control
audits or activities did your CCR conduct? Definitions below for
reference. Check all that apply.

21. How often does your CCR provide feedback to reporting facilities
on the quality, completeness, and timeliness of their data?

22. Does your CCR perform record consolidation on the following?
Record Consolidation
Patient
Treatment
Follow-up
23. Although death certificate processes require matches on all
underlying causes of death, does your CCR match all causes of death
against your registry data to identify a reportable cancer?
Death Clearance

24. During the death certificate linkage, does your CCR match by
tumor (site/histology) and not just by patient identifying information?
25a. Does your CCR update the CCR database following death
certificate matching within 3 months of linkage?
Death information (vital status and cause of death)
Missing demographic information
25b. If yes, what percentage(s) of the updates are performed
manually or electronically? (Provide best estimate. There may be
some overlap between automation and manual review.)
Manually Electronically
(%)
(%)
Death information
Demographic Information
26a. After your CCR provides an edit set to reporting facilities and/or
vendors to use before data submission, does your CCR require
facilities to run edits before they submit their data to the registry?Edits

26b. Please choose the option below that most accurately represents
your CCR’s established threshold for percent of records passing edits.

27. NPCR program standards specify performing National Death
Index (NDI) linkage on an annual basis. How often does your CCR
link to the NDI? Check only one.Linkages

28. For which of the following has the NDI linkage proven to be
useful? Check all that apply.

29. Which databases did your CCR link records in 2024-2025 for
follow-up or some other purpose? Check all that apply.

Data Quality Assurance Comments
You may add comments regarding your responses in the “Data Quality
Assurance” section above.
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Data Use
30. Within 12 months of the end of the diagnosis year, with data that
are 90% complete, does your CCR produce:
An electronic data file of incidence counts, rates, or proportions
by SEER site groups?
A report of incidence counts, rates, or proportions by SEER site
groups?
31. Within 24 months of the end of the diagnosis year, with data that
are 95% complete, does your CCR produce:
Reports on age-adjusted incidence and mortality rates using
SEER site groups? Age, sex, race, ethnicity, and geographic area
are stratified where applicable.
Biennial reports on stage and incidence by geographic area,
emphasizing screening-amenable cancers and cancers
associated with modifiable risk factors?
32. Indicate which cancer screening and/or cancer-related risk factors
were covered in the CCR’s reports. Check all that apply.

33. Indicate the most recent diagnosis year an electronic data file or
report was made available to the public:
34a. Indicate the number of times between January 1, 2025, to
December 31, 2025, the CCR, state health department, or its
designee used registry data in each category to understand the
cancer burden in support of cancer prevention and control priorities.
Please provide best estimate. Enter ‘0’ if not applicable.

Data Use Category

Number
per
Year

Comprehensive cancer control detailed
incidence/mortality estimates
Detailed incidence/mortality by stage and
geographic area
Collaboration, as defined in DP22-2202, with cancer
screening programs for breast, colorectal, and
cervical cancer
Health event investigation(s) (i.e., cancer cluster
investigations)
Needs assessment/program planning (i.e.,
Community Cancer Profiles)
Program evaluation
Epidemiologic studies
Survivorship programs
Other, specify:
34b. Have any of the above uses of data been included in a journal
publication in the last two years?
35. Between January 1, 2025, to December 31, 2025, which data use
activities did the CCR participate in? Check all that apply.

36. Between January 1, 2025, to December 31, 2025, in what ways
did your CCR use U.S. Cancer Statistics (USCS) data? Check all
that apply.

Data Use Section Comments
You may add comments regarding your responses in the “Data Use”
section above.
Edit
Collaborative Relationships
37a. As of December 31, 2025, has your CCR established and
regularly convened an advisory committee to assist in building
consensus, cooperation, and planning for the registry?Advisory
Committee

37b. The advisory committee includes representation from: Check all
that apply.

37c. How often does the advisory committee convene? Check only
one.

38. In what ways does your CCR collaborate with your state's National
Breast and Cervical Cancer Early Detection Program (NBCCEDP),
National Comprehensive Cancer Control Program (NCCCP), and

other chronic disease programs? Check all that apply.Cancer &
Other Chronic Disease Programs

39. With which other Department of Health programs does your CCR
collaborate? Check all that apply.
Health Department

Collaborative Relationship Section Comments
You may add comments regarding your responses in the
“Collaborative Relationship” section above.
Edit
Other Surveillance Activities
40. If your CCR receives electronic pathology reports, in which format
are these received? Check all that apply.

41. For which of the following cancer surveillance needs has your
CCR been in contact with your Health Department's infectious disease
program staff? Check all that apply.

42. Which of these did the CCR conduct in the past year (January 1,
2025 – December 31, 2025)? Check all that apply.

43. Does your registry have a system in place for early case capture
(rapid case ascertainment)?
44a. If Yes, is early case capture performed for:

44b. If yes, within what time frame are cases reported?

Other Surveillance Activities Section Comments
You may add comments regarding your responses in the “Other
Surveillance Activities” section above
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Survey Feedback
45. Please indicate your experience completing the 2026 NPCR
Program Evaluation Instrument:

a. All or most of the questions are clearly stated.
b. I understand the importance of all or most of the questions.
c. I consider the time spent completing the instrument to be a
worthwhile contribution to NPCR and the cancer surveillance
community.
d. Our registry uses the data collected in this instrument.
46. I would like to participate in discussions regarding the NPCR
Program Evaluation Instrument

47. I have the following suggestions or revisions to the NPCR
Program Evaluation Instrument:
Edit
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